A Regular Kind of Week

My life has suddenly become very busy.  On Wednesday mornings I go to a sign language class and on Thursday mornings I go to a music class.  Both of these are at Surrey Place, which is close to Sick Kids but just a place where kids who are like me, mostly with Down Syndrome but some with some other quirks too, can go and play and learn with other kids who like to learn things at own pace.  Mommy and I have been going for 2 weeks and starting this week Mama C is going to take me to the sign language class so that she can learn too.  I’m happy about that because then I’ll have at least one morning a week to hang out with Mama C.  Have I mentioned that I miss her while she’s at work.  We’ve been trying to get up together in the mornings so that she can feed me a bottle, get me dressed and put my hair in pigtails before Mommy has to get up.  I don’t know why we didn’t start this before but I really like it – it’s just our time.

Last week was Thanksgiving and this is a holiday that I can totally get behind.  On Sunday we went to Gramma and Pa’s house and there were sooooo many people there! Everyone was happy to see how well I was doing and so I put on a good show for them.  I was barely cranky at all and I just kept smiling and smiling my big squishy face smile and won everyone over.  The mom’s were really happy because I’ve had a cold and I can get cranky pretty quickly.  I also got to see Kristy and Tia and Deana who live next door to Gramma and Pa.  It was nice to hang out at their house for a little bit because they have 2 dogs that just love sniffing my toes and they let me pet their fur without getting mad.  Tia also made me a sock monkey, which I love so much and now it’s sitting on my shelf that has all of my favourite toys.

On Monday, we spent the day with Grandma and Grandpa at Uncle Jeff’s house.  I got to spend so much time snuggling with Uncle Jeff and Grandpa.  But I was really tricky with Grandma.  She had been helping Mama C in the kitchen so I didn’t get to spend as much time cuddling with her, but the two times that she finally got to snatch me for a bit, I managed to wiggle around and open the port to my g-tube and leak all over her! The first time was really really messy, but then I thought it would be funny to do it again!

In other news, we saw my regular doctor this week and she is super super happy with how well I’m gaining weight and growing.  She’s so happy in fact that she stopped one of my reflux medications completely AND she told Mommy that they can stop getting up in the middle of the night to feed me! During the day I still have to eat every 3 hours, but we’re just going to do a little more during the day to make up for not doing any eating at night.  The mom’s seemed a little excited about this news but I can’t figure out why.  It’s not like the night feeding was a lot of work – I slept right through it!